Link Family

A Link Family is a family who has volunteered to provide unbiased, confidential advice to parents who have just received a diagnosis of Down Syndrome.

While the Doctors and Midwives can provide a medical approach to the topic, they often lack the personal experience of raising a child with diagnosis.

The time of diagnosis, whether prenatal or postnatal, can be terrifying, and it is something that every one of our link families have experienced. They will be able to reassure you that the emotions you are feeling are normal and something we have all experienced.

They will be able to answer any questions you may have on raising a child with Down Syndrome, offer advice on how they coped with certain health issues and provide a true-to-life account of what this actually means for your child and family.

They can also offer advice on how to tell family members and siblings.

If you decide not to continue with your pregnancy, we will continue to offer you support should you feel you still want or need it.

If you do continue, we can point you in the direction of some amazingly supportive groups through social media or in your local area and also advise you of financial support you are entitled to. Mostly, we want to inform you that our support doesn't end when you leave the hospital.

Ultimately, the amount of involvement you have with your Link Family relies solely upon you, and how much you feel you need as a family. We are there solely to offer you another perspective and to help you get through the process of diagnosis.

There are a number of ways you can have contact with your link family, via email, phone, Facebook or you can meet face to face, if you feel it will help.

How this all works relies entirely on how much support you feel you need at this point, as long as you bear in mind, that we are there for you 24/7.